Monday, October 12
Today is Chuck's 47th birthday.
The last couple of days have been aweful for Chuck (and me), so much, that I've a difficult time dealing with it all let alone writing about it. The pain has gotten to the point that Chuck spends most of the time heavily sedated with pain meds and anti-nausea medicine. He hasn't been able to keep much of anything down for days and everything goes right through him. What we were using for the anit-nausea before no longer is effective for Chuck. This new medicine makes him very sleepy. He is still on the TP line but not absorbing much nurtrition. His feet and legs are swollen because of it. They suspect that Graft -vs-Host Disease is flaring up and it's obvious that the BK virus is still active. It's like being in terrible holding pattern with hope of braking it....
There has been a difference on opinion from the doctors as what our next step should be and because I am finished with the politics of this nightmare; WE are going to take him home tommorrow with "Home care". Should the need become apparent, we will call in Hospice but for now, we will continue to take things one moment at a time....
Our goal is to keep him as comfortable as possible.....
Thanks to all the birthday wishes........
Dayna
The last couple of days have been aweful for Chuck (and me), so much, that I've a difficult time dealing with it all let alone writing about it. The pain has gotten to the point that Chuck spends most of the time heavily sedated with pain meds and anti-nausea medicine. He hasn't been able to keep much of anything down for days and everything goes right through him. What we were using for the anit-nausea before no longer is effective for Chuck. This new medicine makes him very sleepy. He is still on the TP line but not absorbing much nurtrition. His feet and legs are swollen because of it. They suspect that Graft -vs-Host Disease is flaring up and it's obvious that the BK virus is still active. It's like being in terrible holding pattern with hope of braking it....
There has been a difference on opinion from the doctors as what our next step should be and because I am finished with the politics of this nightmare; WE are going to take him home tommorrow with "Home care". Should the need become apparent, we will call in Hospice but for now, we will continue to take things one moment at a time....
Our goal is to keep him as comfortable as possible.....
Thanks to all the birthday wishes........
Dayna
Hi Dayna,
You, Chuck and your family remain in my prayers. You are such a strong person. If you ever need to talk or let off some steam, please feel free to call me.
Patty
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your article is so informative and interesting. nice shared.
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My dog is sick (((
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Why should I live?
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When it was summer come?
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Manchester United - Champion!
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I want the space! How much does it cost?
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Manchester United - Champion!
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Hi, Thanks for sharing such a wonderful piece of information. I must say that while reading your post I found my thoughts in agreement with the topic that you have discussed, which happens very rare.
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Really interesting topic raised
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