Tuesday, October 6
I wish there was something positive to write about Chuck and his that quality of life has improved. But there is not and It has not. I spend hours just watching him breath b/c I am afraid that I will miss his last breath.
Yesterday was another aweful day for him.
They had snowed him with pain meds over the weekend and in attempt to convert the pump meds to pill form; their recommendation on the dosage seemed "over the top"; we wanted to be more conservative considering what he was on when I had admitted him. What no one tolds us was that when the dosage is decreased more than 50%, Chuck would go into withdrawl. So, he had a miserable day of dealing with that and no one enlightened me until late yesterday as to why he was so ill. As a result, for the next couple of days, we have feed him enough pain meds to brings his tolerance level to where his body is comfortable THEN cut back
I know this has been and continues to be difficult for all of us. It seems so unfair and for yu'all who have stayed with us and followed this past year, I hope you take something "positive" from this experience b/c I can't believe that Chuck's life has been in vain. There are times when seeing something "positive" can be clouded but it's there, you just have to recognize it for yourself.
I have learned about "Fortitude, hope and faith" and how they change/evolve through life's most challenging times.
I have learned to be humble and to find comfort in company of loving and supportive people. How to lean.
I have learned how to open my heart and mind to a world where people find hope in a day where they are able to a step without assistance or a breath without oxygen.
I have learned to live one moment at a time.
I have learned there is a greater plan for us then we had planned.
I believe and trust that God has a plan for all us and that he will keep us in his Grace.
There is a song that I heard recently that I can't seem to get out my head. I wish that I "tech savy" enough to download it so yu'all can listen to it but it's "In this Life" by Collin Raye.
Chuck had a quiet night and slept comfortable though he has started a low fever. We will have to wait and see what the day brings.
Remember to give your honey and extra hug today....
Yesterday was another aweful day for him.
They had snowed him with pain meds over the weekend and in attempt to convert the pump meds to pill form; their recommendation on the dosage seemed "over the top"; we wanted to be more conservative considering what he was on when I had admitted him. What no one tolds us was that when the dosage is decreased more than 50%, Chuck would go into withdrawl. So, he had a miserable day of dealing with that and no one enlightened me until late yesterday as to why he was so ill. As a result, for the next couple of days, we have feed him enough pain meds to brings his tolerance level to where his body is comfortable THEN cut back
I know this has been and continues to be difficult for all of us. It seems so unfair and for yu'all who have stayed with us and followed this past year, I hope you take something "positive" from this experience b/c I can't believe that Chuck's life has been in vain. There are times when seeing something "positive" can be clouded but it's there, you just have to recognize it for yourself.
I have learned about "Fortitude, hope and faith" and how they change/evolve through life's most challenging times.
I have learned to be humble and to find comfort in company of loving and supportive people. How to lean.
I have learned how to open my heart and mind to a world where people find hope in a day where they are able to a step without assistance or a breath without oxygen.
I have learned to live one moment at a time.
I have learned there is a greater plan for us then we had planned.
I believe and trust that God has a plan for all us and that he will keep us in his Grace.
There is a song that I heard recently that I can't seem to get out my head. I wish that I "tech savy" enough to download it so yu'all can listen to it but it's "In this Life" by Collin Raye.
Chuck had a quiet night and slept comfortable though he has started a low fever. We will have to wait and see what the day brings.
Remember to give your honey and extra hug today....
Dayna and Chuck--
I just found your blog. With tears in my eyes, I am praying for you both, and the boys.
Love,
trish
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http://www.youtube.com/watch?v=-zfpAkQvSpk
In this Life - for you
My heart is aching for you both. You are a special couple. God Bless You Both.
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