Monday, September 28

We had a wonderful visit with Damon, Kellie, Cheryl and Crystal on Saturday. Chuck said is it was good to laugh. Damon is always good for a story or two about his little girls that always brightens our day.

Mom and Brandon were down Sunday to watch the Eagles with us.

Unfortunately, the pain in his kidneys increased considerable over the weekend. He started with a fever over night.

As we mark the "1" year, he will be admitted back into MUSC with another infection. They feel it will only be for a couple of days as they get it under control with antibiotics. They tell us that his both his kidneys and liver are improving. That they are encouraged by his "counts" so they will continue to cut back on the steriods aggressively.

That all sounds great but I still see Chuck struggling to get through each day with pain and dispair. I find it hard to stay "cheery" as I double his pain med dosage so that he may have 1 hour of sleep before he needs to get to the bathroom.  That is our days and nights, one hour at a time........
 
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