Friday, September 25

Chuck had another difficult night added by tending to the TP line. I appologize for being unclear about the nutrition line (TP). Originally, the doctors spoke to us of options for the nurtrition source. One being, inserting a tube directly into Chuck's belly, another would  be just hooking him up through his pick line in his arm. Both have options have pro's and con's but b/c of his pain in the belly area they opted for the pick line which was a relief.

Today didn't go as expected. WE got to the IR early in hopes to they would find the source for his kidney pain. Because  his platelets were low and a scan showed no evidence of anything out of ordinary, they decided to wait another 2 weeks before they change the kidney lines. This leaves us with no real answer for the source of his pain other than, his body is just so sensitive to them along with the virus factor.

We now have him on 24/7 pain medication.  His appetite is almost non existing and he eats less every day. They do continue to decrease his steriods b/c they tell us that his liver is improving but the result of decreasing the steriods is even more fatique. He can not walk without assistance and is very unstable on his feet.

WE ended up back in the clinic with more blood and plateletes. We decided it would be best to stay close to the hospital this weekend.

Damon and Kellie are will be down to visit tomorrow. It will be nice to spend some time with them...

PS... Happy Birthday Karen!!!

Remember to live in the moment.......Dayna
 
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