Wednesday, September 23
Today was a "down" day. Chuck was up most of the night as usual but now he tries to make sure he eats or drinks something as much as possible. This has become another stress that he doesn't need. He really doesn't want to have another tube in him but I fear it may be our only solution; if only temporarily.
The bladder is flowing clear today due to the Amicar but he still has pain when he relieves himself. The BK is cycular and the bleeding will return. The days just don't change.
The bladder is better, well there is less blood/clots but the lines are still problematic and painful. He was hit with severe kidney pain late this afternoon and we were able to get it under control with meds. Giving him pain meds and judging what and how much to give him, weighs heavy on me. I am always in fear of over medicating him.
The hospital has better drugs but I hate to take him there for fear he would catch something else. If things don't improve, we may not have a choice. We are back to the clinic early tomorrow AM.
Thanks for checking on us.......
The bladder is flowing clear today due to the Amicar but he still has pain when he relieves himself. The BK is cycular and the bleeding will return. The days just don't change.
The bladder is better, well there is less blood/clots but the lines are still problematic and painful. He was hit with severe kidney pain late this afternoon and we were able to get it under control with meds. Giving him pain meds and judging what and how much to give him, weighs heavy on me. I am always in fear of over medicating him.
The hospital has better drugs but I hate to take him there for fear he would catch something else. If things don't improve, we may not have a choice. We are back to the clinic early tomorrow AM.
Thanks for checking on us.......
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I was a hyper kid in school and the teacher suggested to my mom she needed to do something with me.
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Above and beyond having the social life, to have a core group of people that you work with and spend time with and learn how to work with is a nice thing.
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The more the universe seems comprehensible, the more it also seems pointless.
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My mother played piano so we always had music around the house.
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The secret to winning is constant, consistent management.
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I try to get that across in the work, to try to, if I'm lucky, to make this world a little bit better for all of us before I check out. And that's if I'm lucky, I don't always get to have that privilege but I try always.
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