Thursday, September 17
Its' amazing what you learn to do when necessary. Both of Chuck kidney lines leaked at the connection valve. I made a call to one of nurses and she told me that sometimes the surgeon leaves the stiich too long and it causes the valve not to thread securely.
Sure enough, I had to disconnect the valve from the line that goes directly into his kidney and there was a black thread. With very fine scissors, I was able to snip the thread and reconnect his valves. YEAHH!! no more leaking.
At the clinic, I am having them change all of the exterior lines and bags every week. I think this will help keep the infections down. He will have the internal lines change every 4 weeks.
Chuck is doing really well the last couple of days. The bladder medicine is doing what it needs to do while his bladder continues to heal.
We have started to finally cut back on some of the meds but it makes him very fatigued. They tell us this is normal to expect it.
It's crazy he takes meds to address the side effects of other medications. But it's progress, he is down to around 55 pills a day depending on what is going on...Some need to be decreased gradually while others can be discontinued as the symptoms disappear...
If all is good with his counts, we are out of here for the weekend. We are very excited about going home. We are actually thinking that we will need to room at the Lodge only for another week. If his visits at the clinic are down to 2x week then we can just travel down here for the visit and he can come home.
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Dayna this is fabulous news that Chuck will hopefully get to go home!!!!! That should just boost his energy. Let us know what happens and hopefully with you home for more than a few hours we will be able to have our HO night soon.....I am sure that you need it. Love to you both.....Lisa
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55 pills a day? Wow, I hope he can reduce that number soon. I'm glad his ine is no longer leaking and he's on the road to healing. That's a huge point for progress.
Makayla
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Love does not just sit there, like a stone; it had to be made, like bread, remade all the time, made new.
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Ruin is the destination toward which all men rush, each pursuing his own best interest in a society that believes in the freedom of the commons.
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Unbelievable
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When I'm winning, winning, winning with a certain way why would I mess with that? When I realised there was lot to be gained from failing in some people's eyes, it made it all the more interesting!
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It's not how you pick your nose, it's where you put that booger that counts.
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