Where's Chuck??

Chuck is currently at MUSC (Medical University South Carolina) in Charleston.

 
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  • 10/27/2008 8:38 PM gail and keith wrote:
    DEAR DAYNA AND CHUCK,
    DAYNA I HOPE U ARE TAKING CARE OF YOURSELF! IN ALL THE YEARS WE HAVE KNOWN YOU, I ALWAYS KNEW HOW STRONG YOU BOTH WERE AND YOU WILL BOTH BE TESTED BUT ISN'T IT WONDERFUL KNOWING YOU HAVE EACH OTHER TO LEAN ON, AND THE AMAZING AMOUNT OF FRIENDS YOU HAVE IS UNBELIEVEABLE. TAKE A DEEP BREATHE AND KEEP LOOKING FORWARD. LOVE YOU
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  • 10/29/2008 6:27 PM Dayna wrote:
    Well, it seems that we got lucky since last week's scare. The antibiotics that Chuck needed have taken care of whatever infection that his body was fighting. He made his weekly visit to the clinic today and didn't need any platelets or blood so that is a good sign. We still wait for a donor match and continue to prayer that his body accepts the chemo medicine. All and all, things are going well. His spirits are good....
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  • 10/31/2008 7:56 AM Mike Allen wrote:
    Hi Chuck, I am thinking of you daily and you and your family are in my prayers. I'm doing fine over here so don't worry about me. I will see you when I get home in December.

    God Bless,
    Mike
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  • 11/1/2008 9:23 PM gail and keith wrote:
    HI DAYNA AND CHUCK,
    SO GLAD TO HEAR YOUR NEWS, I WAIT TO HEAR FROM YOU ON THIS BLOG TO HEAR ANYTHING THAT IS GOING ON AS I AM SURE EVERYONE ELSE IS DOING THE SAME. BOTH OF YOU TAKE CARE,,, LOVE LOVE LOVE
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  • 11/2/2008 11:22 AM Dayna wrote:
    HI
    Chuck is getting a little any waiting for something to happened. Y'all (my southern is showing, LOL!)know how well he likes to be idle. Physically, he is maintaining to the best that he could be. Emotionally, we are just anxious to find a donor and move things forward so we can start on the recovery process. He is a little down with so much time to think too much.......
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    1. 11/2/2008 6:42 PM Dayna wrote:
      LOL!!! Spell check is killing me...
      Chuck is getting alittle "Ansy" waiting for a donor match....
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  • 11/4/2008 3:22 PM Mark wrote:
    Chuck and Dayna, glad to see the bonding strength you guys continue to manufacture. Her for you as always... just around the corner.... buy some leggos for chuck,.... he needs to be building something....... in my thoughts as always..... mark
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  • 11/4/2008 3:23 PM mark wrote:
    um.... my spell check is broke to!... "HERE' for you guys whenever.......
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  • 11/4/2008 3:29 PM Fran Littlewood wrote:
    Legos are a great idea. Dayna, we have quite a few video games that we could send down if needed!!! All our love and support - The Littlewoods
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  • 11/4/2008 7:49 PM Dayna wrote:
    LOL!! I love the Lego's ...
    We were told early this week that Cheryl his sister is a "half match". I am not sure what that means except that they will consider this an option. They told Chuck that were waiting on results from 3 other donors and calling some others this week. He goes for his weekly trip tomorrow (Wed)so hopefully, we will get some positive news.
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  • 11/5/2008 12:22 AM Denise wrote:
    Dayna,
    Been trying to keep up with everything going on and just wanted to let you and Chuck know that you've got prayers going on here in 'Bama! I know how hard it is to keep things going when you're so far from family, but we're made from tough stock! Make sure you're taking care of 'you' also!

    Looks like you've got a lot of people pulling for you both too. That's great and it's comforting to know that so many people care! Keep me posted. Love Denise
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  • 11/6/2008 4:44 PM Linda wilson wrote:
    Dayna and Chuck, my prayers go out to you and hope that you quickly find a match to get you on a quick road to recovery. Your love for one another and your obvious support from family and friends, I hope will see you through to happier and healthier days ahead. God Bless and keep you and hold you safely in the palm of his hand.
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  • 11/12/2008 8:43 PM Dayna wrote:
    Hi

    Last Saturday Chuck started with what we now know is a flu. His fever seem to fluctuate daily. Monday afternoon, we had to take him to the local ER for 102 temp. It went down within the 5 hours that we were there so they let me take him for the night. He had an appointment schedule already for clinic at MUSC for Tuesday morning. It was a rough night and by the time we made the 2 hour drive to Charleston he was shaking uncontrollably from fever. He fever had spiked 103.9. He has been admitted into MUSC back at the "ART" building for treatment of a viral flu. His fever spiked to 104.2 today, we hope that they will be able to get it under control soon.
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  • 11/14/2008 8:37 PM Dayna wrote:
    Chuck is recovery from a viral infection that caused him to have a fever of 105. He is resting comfortably at MUSC and we hope that he will be able to come home Sunday.
    The team of doctors are now suggesting utilizing the baby cord stem cell transplant. This whole thing is very involved but the crux is that they are planning on initiating the transplant in 2 weeks. They want to give Chuck's body a chance to recover.
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    1. 11/15/2008 9:20 PM karen wrote:
      Hey guys,
      Wow,this just blows my mind, the things they can do with the body.How are you holding up Dayna? I guess the delay in the restaurant opening happened for this reason. I'm not sure what this baby cord procedure is, but keep us all in the know. You're in good hands and hope you feel the amazing support from all of us......prayers,XOXOXOXO's to ya's
      Karen and Pete
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  • 11/14/2008 8:39 PM Dayna wrote:
    Chuck is recovery from a viral infection that caused him to have a fever of 105. He is resting comfortably at MUSC and we hope that he will be able to come home Sunday.
    The team of doctors are now suggesting utilizing the baby cord stem cell transplant. This whole thing is very involved but the crux is that they are planning on initiating the transplant in 2 weeks. They want to give Chuck's body a chance to recover.
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  • 11/16/2008 9:40 PM Dayna wrote:
    "Thank you" to everyone who has given so much as you continue to support Chuck and our family during this very unsettling time. Jeff and Mark surprised us with the very generous gift made possible by so many of you. Please accept our heartfelt appreciation. You have touched our hearts and strengthen our faith. We pray for courage and strength each day as God blesses us with friends of the heart.
    Chuck was released from MUSC last night still battling a feve. They tell us that it's viral and there is nothing they can do for him. It just needs to work it way through. Meanwhile, he recieved 2 bags of blood before leaving which caused an allergic reaction. They have given him benadryl to ward off the reaction but he is miserable. This is not one of his better days....
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  • 11/18/2008 11:46 PM Dayna wrote:
    We admitted Chuck back at MUSC. Shortly, after coming home on Saturday, he had a terrible reaction to (what we know now)a drug that he has been taking that nutralizes the toxities released in his body from the Chemo. His whole body is the color of raw meat and his face is swallon. He is on a morphine drip and steriods for pain and to counter act the reaction. He is resting as comfortably as he can and definitely in the best possible place. His parents are wonderful staying with him everyday as I have my hands full with a new job. Brandon stays with his dad on Wednesdays and Drew came down all last week. People tell me all of the time that this CML is curable but we still have to get there...Thank you all for your prayers. They have become my strong hold as we live this strange reality each day.
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  • 11/20/2008 8:58 AM Dayna wrote:
    Chuck is doing better. They seemed to have narrow down the cause of his reaction to a medication or a combination of medications that he was taking. No wonder, considering there were 6 different ones. Anyway, he is feeling better. He still is the color of raw meat and they say that should start to go away within a couple of weeks.
    They have schedule the transplant tentatively for mid-December, so we he will be spending the holiday's in Charleston.
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    1. 11/21/2008 6:53 PM karen wrote:
      Hey Dayna,we just got caught up on the blog. Still sending our deepest thoughts and prayers your way to float you and your families through this wave.We're excited to hear of the tentative date. I hope you guys catch a peaceful break in the up and coming weeks. Lots of Love XOXOXOXOXO Karen and Petey
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    2. 12/2/2008 12:15 AM Nicole & Alan Walker wrote:
      Dear Dayna and Chuck - hoping each day is bringing you closer and closer to a successful transplant. You will be in our hearts this holiday season as we pray for continued strength and courage for each of you.
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  • 11/24/2008 8:56 AM Mark wrote:
    Chuck & Dayna, i felt honored to come down and see you guys. Hard to keep the tears back.Jeff and I were like little kids, waiting to come down the steps Christmas day, As we hid around the corner of your house, couldn't wait to see Chuck. Merely a small token of what everyone's love and friendship. Keep your strength, keep your faith, and gather the thoughts and prayers from us all.
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    1. 11/24/2008 7:05 PM Dayna wrote:
      Mark

      I was wonderful spending time with you and Jeff. YOu were like little kids and it was very endearing. Your visit definitely brightened our day. I just wish we were both not so exhausted at the time... Our strength comes from your prayers and kind thoughts. We are most grateful...
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  • 11/24/2008 2:00 PM Joy Sizgorich wrote:
    Dayna, Pete told me about Chuck and everything you guys have been through - you both sound pretty amazing! Life certainly has thrown you a curve and you are just the person to have your glove ready to catch it. These blogs contain some very inspirational words and thoughts and I know they will help sustain both of you as you weather this very difficult time. Please know that my thoughts and prayers are with you and your whole family. Fondly, Joy
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  • 11/24/2008 6:28 PM Dayna wrote:
    Chuck went to Charleston today and had another bone marrow biopsy done and a lung compacity test. It looks like they are going to get things rolling some time next week. They have taken Chuck off all meds excepts a couple of antibiotics and benadryl. His appetite has return so we work on fatting him to gain strenght for this next journey.
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  • 11/24/2008 11:02 PM Denise wrote:
    Good luck next week. I've been keeping you both in my prayers.
    Love Denise
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  • 11/25/2008 5:34 PM Robyn Andrew wrote:
    Dayna, Chuck and Family. We love you guys and please know you are always, always , always, in our thought's and prayers every minute of every day! Great news on the Bone marrow Transplant! Always know we are here for y'all. Chuck your a Trooper. Keep the Faith.. hugs,,Robyn, Tony ,Tres and Toby.
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  • 11/29/2008 8:05 PM gail and keith wrote:
    HELLO TO BOTH OF YOU.. WE ARE SO EXCITED THAT THINGS ARE STARTING TO MOVE ALONG FOR U CHUCK, I CAN'T BELIEVE WHAT IT MUST BE LIKE FOR YOU BEING IDLE AND WAITING. STAY STRONG AS WE KNOW YOU WILL, WE SEND YOU LOVE AND SUPPORT AND I GREAT BIG KISS GOOD LUCK MY DEAR FRIENDS!!!!!
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  • 12/1/2008 5:24 PM Mark wrote:
    Just on my mind today, thinking bout you guys and what chuck must be going thru... wishing wellness as always....
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  • 12/2/2008 5:45 PM Lisa Woodle wrote:
    Chuck and Dayna:
    We are thrilled that they are going to be doing the transplant next week and we hope that this is the answer we have been praying for. Know that you are being thought about on a daily basis and that we miss you like crazy around here. Keep us informed and we will keep checking this blog to check on Chuck's progress. Please know that if you need anything at all that we are all here for you.

    Your Ho's
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    1. 12/3/2008 1:51 PM Dayna wrote:
      LOL!! I miss you, too...
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  • 12/3/2008 1:54 PM Dayna wrote:
    We returned last night from another trip down to MUSC. Apparently, it has been the antiobiotic "Chipro" that has been the culpert of Chuck's fever, red skin and total discomfort. He was having a bad reaction/ chemical burn from the drug that was suppose to act as "preventive" medication. Anyway. Chuck is home again and feeling much better. They gave him some topical steriod ointments that have been working miracles. Plans are still in place to start the bone marrow transplant on Monday.
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  • 12/6/2008 11:44 AM Dayna wrote:
    Well, Chuck is ready to go on Monday. He will be admitted early in morning and they well start the procedure. Each day they will introduce another drug or process to prepare his body to recieve the donor marrow. The actual infusion day will 12/16 then we wait to see if his body does accept it.Cross your finger and toes. Lord knows that he has already been through enough physical and emotional trama that we are banking on there will be little complication through the process. He is convinced that he will be the "poster Child" for ordeal. LOL!! It will take a total of 3-4 weeks before he will be released to an "out patient" status. We have been blessed in securing a room at the Hope Lodge for his 90 day "out patient" time. The Hope Lodge(still in Charleston) is literally across the street from the clinic/hospital campus that he will have to visit each day. He will need a caretaker with him at all times through this part. Chuck's parents have very generously offered to take on that most of that responsibility while the boys and I will each take some time to give them a break. The caretaker is required to stay a week at a time and the transition must happen on a Wednesday. The team at MUSC have successfully been doing this for many years and we trust them to take care of all us. I can not express enough how wonderful everyone down there have been with us.
    Things are going to get very hectic for us so, I would like to Wish all of you a Safe and Blessed Holiday Season. You have all touched our hearts and we are so very grateful. Christmas will have a different meaning for us this year but things will be back to normal next year.
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  • 12/9/2008 7:08 PM Dayna wrote:
    Monday, Day 8
    Chuck was admitted to MUSC where he had they put in the Central Line Cathater with 3 ports so they can drawl blood, give him the medicine. He also recieved A drug to counteract seizers b/c the Chemo that he will recieve thru friday can induce seizers.

    Tuesday, Day 7
    Starting at 8am, they took blood from Chuck every half hour til 10 then every hour til 2. They sent the blood to Seattle where it will be elvaluated to determine how much Chemo he should recieve that will kill his marrow. He recieved the first dose of the Chemo this morning and will continue to recieve it every 6 hours thru friday.
    His spirits are good and ready to get started...
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  • 12/9/2008 7:19 PM Dayna wrote:
    Many of you have asked what you can do for you. Your prayers and kind thoughts are greatly appreciated. We do have a request, we have been blessed with the opportunity to stay at the Hope Lodge in Charleston during this stay in the hosptial and through his 90 days as an outpatient. The Hope Lodge is an incredible place soley supported by the American Cancer Society. The Charleston home is the original but one of 27 throughout the country. There is one as close to you as Hersey, PA. They find out more about the Hope Lodge pleace visit http://www.cancer.org/docroot/subsite/hopelodge/index.asp
    The original founded is still alive at 101
    Chuck and I humbly ask for your support and to send your contibution directly to the Hope Lodge.
    American Cancer Society
    Charleston Hope Lodge
    269 Calhoun Street
    Chareston, SC 29401
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  • 12/11/2008 9:33 PM Dayna wrote:
    Wednesday, Day 6
    Chuck continued with his Chemo regiment and recieved some Magnessium to help for muscle fatigue..

    Thursday, Day 5
    Continued program but he noticed that he starting to feel the side effects of the Chemo wiht the muscle fatigue. They encourage him to walk the halls but he finds it be tiring.
    Chuck's father is a member of the "Old Coots on Scoots" motorcycle club and they gifted us with a generous gift from a Fundraiser they sponsored at the Harley Davidson in Myrtle Beach last Saturday.
    Thank you to all you who blessed us with your generousity.
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